He has no sex drive and is afraid he will never become a man because he suffers from a very rare genetic disease that delays or halts puberty.
Twenty-Nine Year Old 'Boy' Hasn't Reached Puberty
#1 A Man In A Boys Body
Brandon Westfall is a 29-year-old male who hasn't hit puberty. He knew from an early age that something was not right but doctors told him it was nothing to worry about, so he put his energy into his school work and thought it would happen when it was ready.
#2 He Had A Growth Spurt
Just as he was about to graduate from high school, when his friends were all playing sports and dating, he had a sudden growth spurt that took him from 5'4 to 6'3" in a matter of months. He thought it was a good sign, but instead, he should have sought medical attention.
#3 Broke And Homeless
Unable to find employment because of his appearance, he moved to Nevada where he met a young girl and married, but it ended within 2 months because he could not perform sexually. He ended up depressed, broke, and homeless, living on the streets of Carson, Nevada for over 3 years.
#4 Diagnosed Himself With A Rare Condition
He finally decided it was time to find out what was wrong with his body and went to the library and did some research. He diagnosed himself with an incredibly rare genetic condition called Kallmann syndrome, which is characterized by a delay or absence of puberty. Brandon states that he has not experienced voice deepening, growth of facial hair, and has underdeveloped sexual organs, which in turn has affected his sex drive.
#5 He Appeared On The Doctors Show
He began writing to various television medical shows and finally heard from The Doctors, who wanted to interview him about his story and to verify he had the rare disease. He was given the option to do the interview and exam anonymously, but decided, though he is embarrassed to be seen in public, that he may be helping others if he lets himself be seen.
#6 He Wanted To Help Others Who May Be Suffering In Silence
In the television show The Doctors, Brandon admits that he is undergoing a daily struggle both physically and emotionally. He has difficulty finding a job because employees don't believe his age or credit his experience. He also worries that he might not have any children because he doesn't have any drive to approach women. He has muscle spasms and spinal problems as a result of the growth spurt he went through in high school.
#7 He Was Diagnosed And Given Advice
After a four-day examination, it was determined that Brandon did have Kallmann's Syndrome and was initially placed on Axiron, a testosterone replacement therapy (TRT) gel to assist with my low testosterone levels. Doctors advised him to undergo an MRI where it was later found that he had severe spinal injuries that will make it impossible for him to ever do physical work.
#8 They Set Him Up With Treatments He Could Not Afford
The doctors also determined that he had a delayed sense of smell and taste among other things, and set him up with an endocrinologist in Tennessee, which is where he was living at the time. However, due to the costs and the two-hour ride to and from the doctor's office, he could no longer afford to continue his therapy sessions, and he was forced to stop taking his testosterone and seeing his specialists.
#9 He Does Not Qualify For Medical Assistance In TN
The State of Tennessee refuses to give him any medical assistance through their TennCare program because they say that his condition is not life-threatening. However, Brandon is severely depressed and fears that he is not a real person because he is so different. He has had suicidal thoughts on occasion and says that he cries himself to sleep nightly.
#10 He Prays To One Day Have Children Of His Own
His voice is still like a young 8-year-olds, he can not grow any facial hair, his penis never grew from around the age of 5 or 6, and his testicles have never fully formed. He has trouble walking any distance and standing for long periods of time. He prays daily that one day he may be able to lead a normal life and bear children of his own, though that seems impossible at this stage.
