Woman Finds Out She Is Allergic To Her Own Baby, Rare Condition Affects One In 50,000

By Abdul Rafay in Parenting On 16th February 2022
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'I got a few tiny, really itchy marks around my belly button that felt like nettle stings. I went to the doctor after a few days because it was getting more and more itchy and unbearable. They gave me some steroid creams which didn't touch it and it was getting bigger - my belly was covered in red, itchy plaques,' Fiona said.

'It was the third GP I went to see that said it looked like the condition Pemphigoid Gestationis and he referred me to a dermatologist who gave me the strongest steroid cream you can get. It was like I was allergic to my baby.’

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'By 35 weeks I took myself to A&E because I couldn't bear it and nothing was touching it and they gave me four days of oral steroids which helped it calm down.’

'But two days before I was due to give birth it started to get unbearable again and 24 hours after I'd given birth it just exploded and turned into blisters.’

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'If I scratched it, it felt good and temporarily took the itch away but obviously, I was removing the blisters and skin so then I was left with raw, really painful skin and the blisters just came back on top of that. It hurt a lot to even hold my son so I wasn't able to enjoy the newborn stage because of it.'

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She was given a hefty dose of oral steroids and a cream to help her regulate her condition.

'The pregnancy from 31 to 35 weeks was quite hard because my stomach was on fire and obviously I was quite big and had a toddler as well. When I was in labor I didn't feel a thing, I looked horrendous but it wasn't itchy at all,' she continued.

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'But the postpartum bit when it exploded into blisters on my tummy, chest, arms, and legs - everywhere you would hold a baby - that was quite difficult. When I was diagnosed I was shocked because it's so rare - I was hoping they'd got it wrong and it was something else.’

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'But when it started blistering we knew it was that because that's what differentiates it from other pregnancy rashes... my son must have a gene from his dad that my daughter got me from instead because I didn't have it with my first pregnancy.'

The symptoms started to fade after six months, although she still needs to use steroid creams on occasion. 'Because I've just recently stopped using steroids, I get itchy now and then and have to apply steroid cream, so I guess my body is still getting used to it,' she explained.

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'A lot of people have to have immunosuppressive therapies to get off the steroids and get the condition under control so I'm quite lucky. Once it's triggered it's made worse by certain hormones - estrogen mainly - so each menstrual cycle I may get a little flare but not enough to need any steroids.’

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'So I may have some symptoms of it forever but not as bad as before. It's put me off being pregnant again especially because the research says it will come on earlier and worse and I don't think I could do that again even with steroids.'