Due to a unique condition that is little known and has confused her doctors, Lyndis Johnson, 28, who used to be very active, now spends about 23 hours a day in bed.
Woman Who Is Allergic To Gravity Spends 23 Hours A Day In Bed Due To Rare Syndrome
A woman who claimed to be "allergic to gravity" has been confined to bed.
Lyndsi Johnson, 28, is bedridden for about 23 hours a day due to one of the ailments that is least understood in the world.
In February 2022, the American, who is from Bangor, Maine, was given the diagnosis of postural tachycardia, or PoTS.
The woman, who has spent most of the last seven years vomiting, experiencing back and stomach pain, and frequently fainting, has now spoken out about her problems.
She compares her unusually elevated heart rate, which occurs every time she stands up, to being "allergic to gravity," despite taking medicine.
I'm allergic to gravity, which may sound absurd but is true, declared the former aviation diesel technician.
“I can’t stand up for longer than three minutes without feeling faint, being sick, or passing out. I feel much better if I'm laying down.”
“I’m in bed all day, for up to 23 hours a day - I never thought that at 28 I would have to use a shower chair.”
“I can’t leave my house anymore.”
“There is no cure but I’m so grateful for James and what I do have.”
When she first started showing symptoms, doctors were confused by the condition and at one point suggested it was an anxiety problem.
But in October 2020, when she blacked out in a lift while traveling to a hospital visit, things took a terrifying turn.
This set off a chain reaction that resulted in more people passing out in public areas, including the supermarket.
Lyndsi was forced to quit driving and found it difficult to even bend over without becoming dizzy.
“I’d throw up so much my heart would start having prolonged QT intervals and I’d be in hospital on cardiac monitoring,” Lyndsi said.
“I was finally able to speak to another cardiologist who recognized that I might have PoTS.”
“I was so thankful to finally know what was wrong with me so I could be treated.”
Lyndsi is currently on beta-blockers, which have helped with her nausea and reduced her fainting to three times per day.
Despite being ill, Lyndsi wants to relocate from her apartment to a house so she may enjoy the outdoors. “If I’m lying down I feel fine but as soon as I stand up I’m dizzy and faint,” she said.
“I’ve had to adapt to this new life and come to terms with it. I use mobility aids and that helps me.”
“I’m grateful for what I have and I’m still able to study amazing music business. The rug has been ripped from under my feet - I’ve gone from being super active, to having to lie down all day.”
“I can't do a lot of what I used to be able to do, but I've come to terms with that now.”
