Jono was born without some face bones due to Treacher Collins Syndrome. This disease also affects his hearing abilities. He lives very tough life as his parents left him alone due to his rare disease. But wait, there's a more unpleasant twist in his life.
Let's take a look.
Due to Treacher Collins Syndrome, Jono was born without some face bones and impaired hearing.
He says he's lucky, as many people with Treacher Collins need up to seventy separate surgeries to make their lives tolerable.
Jono's parents decided they couldn't deal with his rare condition and they leave him with social services. Later a woman named Jean Lancaster adopted him.
In school, Jono learned that he wasn't normal. His classmates ran away, yelling that they'd catch his disease.
In the beginning, Jono hated his appearance, but he grows as a confidant person who faces his problems.
His children are also affected by Treacher Collins Syndrome disease.
Jono feels he was lucky to be deaf because he wouldn't hear his wife complaining.
He says that my attitude was more disabling than anything and with the right attitude we can achieve anything.
