It’s truly heartbreaking to see your child suffering from a rare disease and what’s worse is…there’s nothing you can do to help, only give love and acceptance until the day their body succumb.
'We’d rather he were dead than suffering like this', say parents of 12-year-old Indian boy whose head hangs at a 180-degree angle due to a rare condition.
#1
Mahendra Ahirwar suffers from an extremely rare condition that makes his head hang from his body at 180-degree angle.
#2
His parents Makesh, 40, and Sumitra Ahirwar, 35, both working as a laborer said that they have already consulted 50 doctors across India but they failed to give answers to Mahendra's condition.
#3
Sumitra's other children are perfectly healthy, a 16 and 10-year-old sons and a 14-year-old daughter.
#4
Mahendra doesn't go to school so his only friends are his siblings and his cousins.
#5
Their children were all born normally so they never thought to consult a doctor or have an ultrasound done with Mahendra, who was born at home just like his siblings.
#6
Sumitra said, "I cannot see him suffer anymore. Watching his life is devastating. He cannot do anything by himself. He just sits in a corner of the room all day. It's no life. I have to carry him like a baby everywhere but he is 12 years old, how will I carry him when he grows even older?"
If doctors cannot treat my son it is better that God takes him
