From The Waist Up She Looks Like A Normal Little Girl But From The Waist Down...
#1
Somme people would look at the wonderful Shiloh Pepin and only see a condition. It's true she was born with Sirenomelia, or "mermaid syndrome," and it had affected almost every part of her life.
#2
Her legs were fused together and several organs are deformed or missing entirely. But Shiloh was more than just her condition. She was a sweet, loving girl with a family who loved her.
#3
Typically, children born with Sirenomelia die within days of being born, but Shiloh overcame this and lived on. Unfortunately, Sirenomelia takes a harsh toll on her body, and sweet little Shiloh couldn't escape the inevitable forever.
#4
The following video is a documentary (get comfortable, it's a long video) about her life, her family, and what it means to live with "mermaid syndrome." Ultimately, it's a view into the life of someone who refuses to be defined by her condition.
#5
After watching this, I will never define someone by their physical conditions ever again.
